Kooxaha taageera Facebook

Halkan waxaan Facebook-ga ku soo ururinay kooxo taageero oo kala duwan oo loogu talagalay waalidiinta carruurta qaba cudurro kala duwan iyo kala duwanaansho shaqo oo aad xubin ka noqon karto.

NB! Kuwani waa kooxo loogu talagalay kuwa ay saamaysay - maaha kuwo daawanaya / dadka xiiseeya.

Waxaad ka heli kartaa kooxaha Løvemammaene Facebook-ga halkan:

Hooyooyinka libaaxa & aabbayaasha libaaxa (xiran - xubnaha Løvemammaene oo keliya)

Kaalmada daryeelka carruurta - su'aalo iyo jawaabo (xiran - xubnaha Løvemammaene oo keliya)

Annaga oo leh carruur qaba cudurro halis gelinaya nolosha iyo kuwa gaabinaya nolosha (xiran - xubnaha Løvemammaene oo keliya)

Qalbi Libaaxa 🧡 Waalidiinta dhalay ilmo ka dib xanuun muddo ah (xiran - xubnaha Løvemammaene oo keliya)

Libaaxa hooyooyinka Waqooyi (xubnaha oo keliya ee gobolka Lion Mothers North - Finnmark, Troms iyo Nordland)

Hooyooyinka Libaaxa Dhexe (kaliya xubnaha gobolka Løvemammaenes Midt - Trøndelag iyo Møre og Romsdal)

Libaaxyada Galbeedka (kaliya xubnaha gobolka Løvemammaenes Galbeedka – Rogaland iyo Vestland)

Libaaxyada Bari (kaliya xubnaha gobolka Løvemammaenes ee Bariga – Innlandet, Buskerud, Telemark, Vestfold, Østfold, Akershus iyo Oslo)

Libaaxyada Koonfur (xubnaha ku jira gobolka Lion Mothers ee Koonfurta - Agder oo keliya)

Dagaalkii libaaxyada (u furan qof kasta oo doonaya inuu raaco oo taageero shaqadayada)

A

Analatresia

Beddelka iyo isgaadhsiinta dheeriga ah

Angelman syndrome

Waalidiinta haysta carruur (kayar 18) oo leh walaac

AHC - Norway

Asperger Norway

Anaga oo haysta caruur/dhalinyaro qaba xanuunka Asperger Syndrome

Waalidiinta carruurta qabta cudurka autism ee Norway

Waalidiinta iyo qoyska haysta carruur autistic ah, dhallinyaro iyo dadka waaweyn ee ku wareegsan

Kooxda Taageerada Asperger iyo ADHD ee waalidiinta

Loogu talagalay waalidiinta carruurta leh ADHD

ADHD Waalidiinta

ADHD/ADD: Kooxda loogu talagalay kuwa qaba ADHD iyo ADD, iyada oo aan lahayn baadhitaano dheeraad ah

Antiphospholipid Syndrome Norway

Carruurta Neefta qaba ee Norway

Waalidiinta carruurta leh neefta, xasaasiyadda iyo cambaarta

Carruurta qabta cambaarta atopic ee NORWAY

Carruurta leh xasaasiyad/xasaasiyadda cuntada

Kuweenna qaba xasaasiyadda borotiinka caanaha

Carruurta leh xasaasiyadda caanaha

Anaga oo leh caruur qaba Albinism

B

Waalidiinta carruurta qaba arthritis-ka carruurnimada

Waalidiinta carruurta indhoolayaasha ah

Waalidiinta iyo dadka ardayda masuulka ka ah ee BPA kormeere ahaan

BPA Norway

Maareeyayaasha Shaqada ee BPA Norway

Cudurka Lyme - Lyme Norway waa la xidhay

C

CP. Waalidiinta leh carruur qaba xanuunka maskaxda ee maskaxda

Xitaa ka sii fiican Beste - Awowayaasha carruurta leh CP

Anaga oo haysta caruur qaba CP spastic quadriplegia/tetraplegia

Anaga oo leh caruur qaba C-pap

Carruurta qaba cudurka baruurta

Cudurka Celiac

Cudurka Crohn ee Norway

CDG Norway

CDG Global Alliance (caalami ah)

Kooxda waalidiinta carruurta leh Noonan syndrome, Costello ama CFC (Waxay u baahan tahay xubinnimada ururka Noonan)

Costello Syndrome Facebook (caalami ah)

Cudurka jaakadaha (caalami ah)

Kooxda carruurta, dhalinyarada iyo dadka waaweyn ee qaba Cystic Fibrosis waa qarsoodi oo aan laga heli karin Facebook, laakiin la xiriir ururka Norwegian Association for cystic Fibrosis waxay kaa caawin karaan inaad ku biirto kooxda.

D

Waalidiinta/masuulka carruurta qaba xanuunka macaanka

Anaga oo qaba nooca 1-aad ee macaanka iyo qaraabada

DYSLEXIA NORWAY, wararka ku saabsan ICT

Golaha dysleksiyada ee waalidiinta iyo dysleksiyada - koox xiran

Dyspraxia

Shabakadda Noorwiijiga ee Down Syndrome - NNDS

DeSanto Shinawi Syndrome Norway

Carruurta qabta diaphragm Hernia (CDH)

Waxa kale oo jira koox Facebook ah oo Scandinavian ah (kaas oo ka firfircoon kan norwejiga) oo loogu talagalay waalidiinta carruurta leh hernia diaphragmatic, laakiin waa sir oo suurtagal maaha in la raadiyo. Kala xidhiidh Sandra Gartland on Messenger si aad xubin uga noqoto.

DIPNECH (La noolaanshaha cudur sambabada naadir ah) (caalami ah)

E

Anaga oo leh caruur suuxdin leh

Kooxda waalidiinta leh caruur/carruur qaangaar ah oo qaba suuxdin

Ehlers-Danlos Syndrome Norway

Waalidiinta ama qaraabada carruurta "laga helay" ESSENCE.

Waalidka carruurta leh ECHS1D (caalami ah)

F

Waalidiinta iyo carruurta LMF (cudurada dheefshiidka)

FRAX – Jab jilicsan

Daryeel bixiyayaasha carruurta qaba cillad khamriga uurjiifka ah (FAS/FASD)

G

Carruurta leh calool xanuun

Nolosha leh Gastroparesis

Guillain-Barre Syndrome Norway

Kooxda taageerada ee Gorlin syndrome ee Norway

Anaga oo qaba qabriyada - cudur difaaca jirka

GMAI1 Taageerada Qoyska (caalami ah)

H

Hooyooyinka iyo aabbayaasha wadnaha

Qaraabada carruurta iyo dadka da'da yar ee maskaxda ka dhaawacantay

Kooxda taageerada qaraabada carruurta/dhallinyarada qaba dhaawaca maskaxda

Hyperinsulinism Norway

Kooxda waalidiinta ee carruurta qabta dhaawaca maskaxda/ faaliga

Waalidiinta carruurta maqalkoodu liito

Maqalkii ayaa xumaaday

Burada maskaxda, bukaanka iyo qaraabada

Carruurta Dareenka Badan - kooxda waalidka

Hypospadias Norway

dysplasia ee sinta

Hemochromatosis

Kooxda Taageerada Waalidka ee Hypotonia (caalami ah)

Badbaadayaasha Qoor-gooyaha & Taageerayaasha (koox caalami ah oo loogu talagalay kuwa qaba meningitis)

IN

Kuweenna leh difaac la'aan

Cudurka West Syndrome/Sanadka dhallaanka ee Norway

Ichthyosemamma - Ila faafi aqoonta ku saabsan ogaanshaha cudurka!

Qaraabada carruurta iyo dadka da'da yar ee qaba ceshad la'aanta

Idiopathic hypertension intracranial, Norway

K

Qoysaska Craniosynostosis ee carruurta leh ee Norway jooga

Waxyaalaha aan caadiga ahayn ee koromosoomyada aad dhif u ah ee leh naafo korriin

Kooxda badhanka

Knappenforeningen (koox loogu talagalay carruurta iyo dadka waaweyn labadaba oo leh badhan)

Caga- Club

Kabuki Association Scandinavian

Cudurka Kennedy (caalami ah)

Kooxda norwejiga ee waalidiinta carruurta qaba kansarka waa qarsoodi, lagamana heli karo Facebook, laakiin Ururka Kansarka carruurta waa hubaal in lala xiriiri karo si loogu daro kooxda.

L

Carruurta leh dheef-shiid kiimikaad hooseeya

Carruurta leh lymfadema

Waalidiinta carruurta qaba arthritis-ka carruurnimada

LCHAD – Norway

Dishin iyo calaac

jeexjeexan faruuryaha iyo dhabanka, kooxda walaasha

Kooxda Lupus Norwegian

Dystrophy muruqa Girdle Limb - Norway

Landau-Kleffner Syndrome Scandinavia

BRIC, PFIC iyo cudurrada kale ee dhifka ah ee beerka (caalami ah)

Kooxda taageerada dulqaad la'aanta borotiinka lysinuric (caalami ah)

M

Waalidiinta carruurta qaba xanuunka

Kuweena leh caruur qaba xanuunka dhanjafka

Mowat Wilson Syndrome - Norway

ME-myalgic encephalopathy/CFS (Norway) - ee loogu talagalay kuwa qaba ME-ga cudurka / baaritaanka

Qaraabada carruurta i qaba

Waalidiinta ME

MS saaxiibo

Carruurta Moyamoya ee Norway

Cudurka Moyamoya (Cudurka Maskaxda ee dhifka ah) (caalami ah)

MELAS Cudur naadir ah (caalami ah)

Kooxda waalidiinta carruurta qaba xanuunada murqaha waa qarsoodi oo lagama heli karo Facebook, laakiin fariin u dir xubinta guddiga Jannicke Sivertsen jannicke@lovemmaene.no si aad xubin uga noqoto kooxda.

N

Kooxda waalidka ee carruurta qaba cudurrada kelyaha

Carruurta qaba xanuunka nephrotic syndrome (caalami ah)

hidda-wadaha NBAS – neuroblastoma oo la xoojiyay taxanaha Naadirka hidde-sideyaasha (caalami ah)

Kooxda waalidiinta carruurta leh Noonan syndrome, Costello ama CFC (Waxay u baahan tahay xubinnimada ururka Noonan)

O

Carruurta qaba OCD - Norway

Kooxda qoyska ee carruurta ay soo gaadhay yaraanta ogsajiinta markay dhashan/bilowga nolosha (caalami ah)

Hypoplasia Neerve Optic iyo Kooxda Taageerada Dysplasia Septo Optic (caalami ah)

P

Ciliary dyskinesia Norway (PCD)

Prader-Willis Syndrome - Norway

Cambaarta atopic & Psoriasis carruurta, dhalinyarada iyo dadka waaweyn

Psoriasis Norway

Psoriasis: Daaweynta & Macluumaadka

Psoriasis Arthritis Norway

Dhicis – Koox xidhan

Waalidiinta caruur aad u dhicisoobay (Micro preemie)

Waalidka dhicisoobay

Kooxda xilli hore – carruurta dugsiga

Waqooyiga Yurub ee dhicisoobay (FIIRO GAAR AH! Kooxda dadweynaha)

Pitt-Hopkins Norway

Dhiig-karka sambabada

POTS / Dysautonomia – NORWAY

PDA Norway

PKU Norway

Suuxdin-ku-tiirsanaanta Pyridoxine ee Norway

PVL leukomalacia periventricular (caalami ah)

Cudurka Pelizaeus-Merzbacher (PMD) (caalami ah)

R

Cudurka 'Rett syndrome' ee Norway

lafdhabarta bifida iyo hydrocephalus

Waalidiinta carruurta leh reflux

S

Waalidiinta carruurta leh cilladaha hidde-sidaha naadir

Waxyaalaha aan caadiga ahayn ee koromosoomyada aad dhif u ah ee leh naafo korriin

Waalidiinta carruurta leh stoma & kayd

Waalidiinta carruurta aragga naafada ka ah

Waalidiinta Scoliosis

Atrophy muruqa laf dhabarta (SMA) Norway

Silver-Russel syndrome, Norway

Stickler Syndrome Norway

Cudurka Soto ee Norway

Carruurta leh cunto diidid

Dhibaatooyinka Luqadda Gaarka ah (ssv)

Koox loogu talagalay waalidiinta carruurta aragga naafada ka ah

Diidmada dugsiga / Maqnaanshaha dugsiga aan ikhtiyaarka ahayn - Waalidiinta

Diidmada dugsiga / Maqnaanshaha dugsiga aan ikhtiyaarka ahayn - waalidiinta iyo xirfadlayaasha

Carruurta iyo dadka da'da yar ee qaba mutism-doorasho

Kooxda kaalmaynta norwejiga ee af-xidhka adag

Sjøgren's syndrome

Kooxda Waalidiinta ee NORILCO

Waalidiinta Caruurta Qaba Shisoofrani (caalami ah)

Kooxda taageerada SELENON/SEPN1/RSMD (caalami ah)

T

Tracheostomy Norway

Waalidiinta carruurta qaba cudurka Tourette

La noolaanshaha TPN

Qaaxada Sclerosis + Qallal.

Xanuunka lifaaqa Norway

Waalidiinta carruurta la korsaday ee qaba cillad la'aanta

TUBB3 isbeddellada hidda-wadaha (caalami ah)

U

Colitis calooleedka/Morbus Crohn – Norway

Xanuunada Wareegga Urea ee Adduunka oo dhan (caalami ah)

V

Carruurta isticmaala hormoonnada koritaanka

Velo Cardio Waji Syndrome Norway

Ururka VACTERL (caalami ah)

W

Cudurka West Syndrome/Sanadka dhallaanka ee Norway

Williams Syndrome - su'aalo/ jawaabo, talo/tibaax

Ø

Carruurta dhegta

Kooxaha kale/kooxaha guud

Waalidiinta leh caruur aad u xanuunsan

15q13.3 microdeletion syndrome Norway

16p11.2 Tirtiridda

Hooyada dhashay ilmaha leh 16p11.2 microdeletion/ nuqul ka mid ah Norway/Sweden/Denmark

Waalidiinta Soomaaliyeed ee leh caruur baahiyaha gaarka ah qaba

Anaga oo haysta ilmo aad u yar

Annaga malaa'igta waalid!

Koox loogu talagalay waalidiinta ilmahooda ku waayey da'yarta ++

Caawin, preeclampsia iyo eclampsia. (preeclampsia)

Awoowayaasha ayeeyo u yihiin ee leh baahiyaha gaarka ah

Dagaalka xuquuqda waalidka

Kaalmada iyo faa'iidada aasaasiga ah

Dheefaha dawladda hoose – Kaalmada daryeelka, la xidhiidhka gargaarka/taageerada iyo caawimooyinka

Waalidiinta carruurta leh baahiyaha gaarka ah

Waalidiinta carruurta leh kala duwanaansho shaqo iyo/ama jirooyin kala duwan

Waxa kale oo jira koox caruur ah oo pre-terminal ama terminal ah, laakiin waa qarsoodi oo aan laga baari karin Facebook. Nagala soo xidhiidh post@lovemmaene.no oo mid ka mid ah xubnahayaga leh carruurta daryeelka palliative ayaa ku siin kara macluumaad dheeraad ah.