Support groups on Facebook

Here we have gathered various support groups on Facebook for parents of children with various diseases and functional variations that you can become a member of.

NB! These are groups for those affected - not spectating/curious people.

You can find Løvemammaene's groups on Facebook here:

Løvemammaene & the lion fathers (closed - only for members of Løvemammaene)

Care allowance – questions and answers (closed - only for members of Løvemammaene)

We who have children with life-threatening and life-shortening illnesses (closed - only for members of Løvemammaene)

Lionheart 🧡 For parents who have lost a child after a period of illness (closed - only for members of Løvemammaene)

Løvemammaene North (only for members in Løvemammaene region North – Finnmark, Troms and Nordland)

Løvemammaene Middle (only for members in the Løvemammaenes region Midt - Trøndelag and Møre og Romsdal)

Løvemammaene West (only for members in the Løvemammaenes region West – Rogaland and Vestland)

Løvemammaene East (only for members in the Løvemammaenes region East – Innlandet, Buskerud, Telemark, Vestfold, Østfold, Akershus and Oslo)

Løvemammaene South (only for members in Løvemammaene region South – Agder)

The battle of Løvemammaene (open to absolutely anyone who wants to follow and support our work)

A

Analatresia

Alternative and supplementary communication

Angelman syndrome

Parents who have children (under 18) with anxiety

AHC – Norway

Asperger Norway

We who have children/young people with Asperger Syndrome

Parents of children with autism in Norway

Parents and family who have autistic children, young people and adults around them

Asperger and ADHD Support group for parents

For parents of children with ADHD

ADHD Parents

ADHD/ADD: The group for those with ADHD and ADD, without additional diagnoses

Antiphospholipid Syndrome Norway

Children with asthma in Norway

Parents of children with asthma, allergies and eczema

Children with atopic eczema in NORWAY

Children with food allergies/allergies

For those of us with a milk protein allergy

Children with milk allergy

We who have children with Albinism

B

Parents of children with childhood arthritis

Parents of blind children

BPA Parents and guardians as supervisor

BPA Norway

BPA Work Managers Norway

Lyme disease – Lyme Norway closed

C

CP. Parents who have children with Cerebral Palsy

Even better with Beste - Grandparents of children with CP

We who have children with CP spastic quadriplegia/tetraplegia

We who have children with C-pap

Children with celiac disease

Celiac disease

Crohn's disease Norway

CDG Norway

CDG Global Alliance (international)

Group for parents of children with Noonan syndrome, Costello or CFC (Requires membership in the Noonan association)

Costello Syndrome Facebook (international)

Coats' Disease (international)

The group for children, young people and adults with Cystic Fibrosis is secret and cannot be found on Facebook, but contact the Norwegian Association for Cystic Fibrosis and they can help you join the group.

D

Parents/guardians of children with diabetes

For us with type 1 diabetes and relatives

DYSLEXIA NORWAY, news about ICT

Dyslexia forum for parents and dyslexics - closed group

Dyspraxia

Norwegian Network for Down Syndrome - NNDS

DeSanto Shinawi Syndrome Norway

Children with Diaphragm Hernia (CDH)

There is also a Scandinavian Facebook group (which is more active than the Norwegian one) for parents of children with diaphragmatic hernia, but it is secret and not possible to search for. Contact Sandra Gartland on Messenger to become a member.

DIPNECH (Living with rare lung disease) (international)

E

We who have children with epilepsy

The group for parents who have children/adult children with epilepsy

Ehlers-Danlos Syndrome Norway

Parents or relatives of children who have been "diagnosed" with ESSENCE.

Parent of children with ECHS1D (international)

F

LMF parents and children (digestive diseases)

FRAX – Fragile X Syndrome

Caregivers of children with fetal alcohol spectrum disorder (FAS/FASD)

G

Children with gastroparesis

Life With Gastroparesis

Guillain-Barre Syndrome Norway

Gorlin syndrome support group Norway

We with Graves - an autoimmune disease

GNAI1 Family Support (international)

H

Heart moms and dads

Relatives of children and young people with acquired brain damage

Support group for relatives of children/young people with acquired brain damage

Hyperinsulinism Norway

Parents' group for children with acquired brain damage/stroke

Parents of children with impaired hearing

The hearing impaired

Brain tumour, patients and relatives

Highly Sensitive Children - parent group

Hypospadias Norway

Hip dysplasia

HEMOCHROMATOSIS

Hypotonia Parent Support Group (international)

Meningitis Survivors & Supporters (international group for those who have had meningitis)

IN

For those of us with immunodeficiency

West syndrome / infantile spasms Norway

Ichthyosemamma - Spread knowledge about the diagnosis with me!

Relatives of children and young people with incontinence

Idiopathic Intracranial Hypertension, Norway

K

Craniosynostosis families with children in Norway

Very rare chromosomal abnormalities with developmental disability

The button group

The Knappenforeningen (group for both children and adults with button)

Clubfoot

Kabukiföreningen Scandinavia

Kennedy's Disease (international)

The Norwegian group for parents of children with cancer is secret and cannot be found on Facebook, but the Children's Cancer Association can certainly be contacted to be added to the group.

L

Children with low metabolism

Children with lymphedema

Parents of children with childhood arthritis

LCHAD – Norway

Cleft lip and palate

Cleft lip and palate, sister group

Norwegian lupus group

Limb Girdle Muscular Dystrophy – Norway

Landau-Kleffner Syndrome Scandinavia

BRIC, PFIC and other rare liver diseases (international)

Lysinuric protein intolerance support group (international)

M

Parents of children with malaise

For those of us who have children with migraines

Mowat Wilson Syndrome – Norway

ME- myalgic encephalopathy/CFS (Norway)-for those with an ME diagnosis/under investigation

Relatives of children with ME

The ME parents

MS friends

Moyamoya Children in Norway

Moyamoya Disease (Rare Brain Disease) (international)

MELAS Rare Disease (international)

The group for parents of children with muscle disease is secret and cannot be found on Facebook, but send a message to our board member Jannicke Sivertsen at jannicke@lovemammaene.no to become a member of the group.

N

The parents' group for children with kidney disease

Kids with Nephrotic Syndrome (international)

NBAS gene – neuroblastoma amplified sequence Rare genetic syndrome (international)

Group for parents of children with Noonan syndrome, Costello or CFC (Requires membership in the Noonan association)

O

Children with OCD - Norway

Family group of children who have been exposed to oxygen deficiency at birth/beginning of life (international)

Optic Nerve Hypoplasia and Septo Optic Dysplasia Support Group (international)

P

Primary ciliary dyskinesia Norway (PCD)

Prader-Willis Syndrome – Norway

Atopic eczema & Psoriasis children, adolescents & adults

Psoriasis Norway

Psoriasis: Treatment & Information

Psoriasis Arthritis Norway

Premature – Closed group

Parents of extremely premature children (Micro preemie)

Premature parents

Premature group – school children

Premature Nordics (NOTE! Public group)

Pitt-Hopkins Norway

Pulmonary Hypertension

POTS / Dysautonomia – NORWAY

PDA Norway

PKU Norway

Pyridoxine-Dependent Epilepsy Norway

PVL periventricular leukomalacia (international)

Pelizaeus-Merzbacher Disease (PMD) (international)

R

Rett syndrome Norway

Spina bifida and hydrocephalus

Parents of children with reflux

S

Parents of children with rare genetic defects

Very rare chromosomal abnormalities with developmental disability

Parents of children with a stoma & reservoir

Parents of children with visual impairments

Scoliosis parents

Spinal muscular atrophy (SMA) Norway

Silver-Russel syndrome, Norway

Stickler Syndrome Norway

Soto's syndrome in Norway

Children with food refusal

Specific Language Difficulties (ssv)

Group for parents of children with visual impairments

School refusal / Involuntary school absence – Parents

School refusal / Involuntary school absence - parents and professionals

Children and young people with Selective Mutism

Norwegian support group for tight tongue tie

Sjøgren's syndrome

NORILCO's Parents' Group

Parents of Kids with Schizophrenia (international)

SELENON/SEPN1/RSMD support group (international)

T

Tracheostomy Norway

Parents of children with Tourette syndrome

Living with TPN

Tuberous Sclerosis + Epilepsy.

Attachment disorder Norway

Parents of adopted children with attachment disorder

TUBB3 gene mutations (international)

U

Ulcerative Colitis/Morbus Crohn - Norway

Urea Cycle Disorders Worldwide (international)

V

Children using growth hormones

Velo Cardio Facial Syndrome Norway

VACTERL Association (international)

W

West syndrome / infantile spasms Norway

Williams Syndrome - questions/answers, advice/tips

Ø

Ear children

Other groups / general groups

Parents with seriously ill children

15q13.3 microdeletion syndrome Norway

16p11.2 Deletion

Mother of child with 16p11.2 microdeletion/duplication in Norway/Sweden/Denmark

Somali parents with children with special needs

We who have a child too small

For us angel parents!

A group for parents who have lost a child in their teens ++

Help, preeclampsia and eclampsia. (preeclampsia)

Grandparents of grandchildren with special needs

The fight for parents' rights

Auxiliary benefit and Basic benefit

Municipal benefits – Care allowance, relief/support contact and aids

Parents of children with special needs

Parents of children with various functional variations and/or illnesses

There is also a group for children who are pre-terminal or terminal, but it is secret and cannot be searched on Facebook. Contact us at post@lovemammaene.no and one of our members with palliative care children can give you more information.