Knowledge is power.
We are here for the love.
The Snapchat channel of Løvemammaene was started on February 1, 2018. It quickly became very popular and today has close to 100,000 subscribers. In addition to 12–15 regular “snappers”, the channel has a number of guests. There is a long waiting list to become a guest. Social media is one of our most important tools for spreading awareness about our causes, sharing information with our members, and is a central channel for getting in touch with us. Løvemammaene can therefore also be found on Facebook and Instagram.
The person logged into the snap replies to anywhere between 100–500 messages during a snap day, depending on the topic and engagement. Most relevant anniversaries within illness and disability are marked on our channel, either by the regular snappers or by guest snappers with their own experience around the matter being marked, such as “Rareness Day”, “World Autism Day” or “International Sign Language Day”.
The channel is administered by the Lionesses Central Board. The channel has its own rules and guidelines for both regulars and guests, including our ethical responsibility, what we can and cannot share, and confidentiality towards ourselves and our followers. Occasionally we have competitions with great prizes, and every December we have a slightly different Christmas calendar with hatches that are relevant to our target groupThe Snapchat channel is alive and constantly changing. Topics change from day to day and provide a unique insight into the everyday lives of families with children and young people with illnesses and needs for help, for better or for worse.
Openness gives knowledge and knowledge is power! We believe that through openness we can contribute to increased understanding of what it is like to live with chronic illness and various functional disabilities. We believe that increased understanding helps to make harmless and “normalize” what many experience as different and foreign, and that we can thereby break down prejudices and reduce bullying, which unfortunately is often a result of precisely a lack of knowledge and understanding. We believe that openness and knowledge dissemination are the key to a more inclusive society, where people with illnesses and functional disabilities are not seen as someone who needs to be “fixed”, but rather a completely natural part of the diversity in our society.
We are here for love!
Follow us here:
Here you can read more about our members on Snapchat, both regular snappers and regular guests. Many of us are also involved in the organization's boards and care. Would you like to visit us? Then you can read about how in the post below here.
Today, about 50 of us gathered at Bø fire station for a facilitated family meeting with the emergency services, organized by the Lion Mothers 🦁 Lion cubs, lion siblings and lion parents
Nav appeals authority asked the Social Security Court to hear the case with five members, instead of two, in TRR-2025-4203, for a fundamental clarification of issues related to
The Lion Mothers have submitted written consultation input to House of Representatives Bill 273 S to ensure completion and quality in upper secondary education. We support the intention behind the bill, but warn
The Lion Mothers' annual report for 2025 shows a year marked by strong commitment and tireless work for children with illness and functional variation, and their families. It
The Lion Mothers have submitted consultation input to NOU 2026: 1 A sustainable municipal sector. We are concerned that the proposals in the report place too much emphasis on efficiency.
From January 1, 2026, the CRPD – the UN Convention on the Rights of Persons with Disabilities – applies as Norwegian law, taking precedence over other law.
At the professional day "When children are affected - Meeting the whole family in family work" organized by the Hospital in Vestfold, 18-year-old Thea Ege Helseth held
The Lion Mothers have long been concerned about the situation of purchased foster parents with seriously ill or needy foster children. Several have experienced being pressured by child welfare services to
The lion mothers have recently been informed about changes in practice and clarifications related to the childcare allowance scheme. We receive many questions from parents who experience refusals or stricter
The Directorate of Health has clarified how the regulations should be understood when parents perform extensive care work because the municipality has not provided the services to which the child is entitled. Brief
An important improvement for accessibility and equality is now in place in public transport. The Ministry of Transport and Communications has decided that companions of people with a companion certificate will be able to travel
From January 1, 2026, the rules for what is covered on a blue prescription will change when it comes to medical consumables (i.e. medical equipment you use at home). Here
The Directorate of Health has provided answers to the Lion Mothers' questions about the municipality's responsibility in BPA schemes; The municipality must ensure that the assistants have the competence your child needs, including
Thank you so much – together we brought Christmas joy to children in hospitals! The Lion Mothers of the North would like to extend a big thank you to everyone who contributed to this year's Spleis fundraiser,
The Lion Mothers have sent a letter to the Norwegian Directorate of Health (HDIR) requesting national clarification on municipalities' practices regarding the cessation of BPA during hospitalization. Over the years, the Lion Mothers have
The Lion Mothers have submitted written consultation input to the Education and Research Committee regarding the 2026 State Budget. We applied to participate in the oral consultation, but were denied.
The Lion Mothers asked the Norwegian Directorate of Education (Udir) for clarification because we see a practice after the new Education Act came into force on 01.08.24 that weakens the right to education.
Today, chairwoman Bettina Lindgren and deputy chairwoman Elin Gunnarsson participated on behalf of the Lion Mothers in an oral hearing for "Amendments to the Human Rights Act, etc. (incorporation of the UN Convention
Today, the Lion Mothers participated in the oral hearing on the Ministry of Culture and Equality's budget for 2026 (the state budget). Deputy Chair Elin Gunnarsson participated on behalf of
Today, the Lion Mothers participated in the oral hearing on the Ministry of Justice and Public Security's budget for 2026 (the state budget). Chairwoman Bettina Lindgren participated on behalf of
The Lion Mothers have sent a letter to the Ministry of Health and Care Services and the Directorate of Health regarding the fact that a number of hospitals are still charging for anesthetics and bandages in connection with
The Lion Mothers believe that there is an urgent need for clarification and action in the matter of foster parents and foster care benefits. We have therefore sent a new request to
The lion mothers are very concerned that children are not attending treatment because their parents cannot afford to pay for expensive hotel stays in connection with the treatment.
Today, the Lion Mothers participated in the oral hearing on the Municipal and Administrative Committee's budget for 2026 (the state budget). Chairwoman Bettina Lindgren and deputy chairwoman Elin Gunnarsson,
Today, the Lion Mothers participated in the oral hearing on the Labor and Social Affairs Committee's budget for 2026 (the state budget). It was treasurer and deputy member Edda S. Aaland and
Today, the Lion Mothers participated in the oral hearing on the Ministry of Health and Care Services' budget for 2026 (the national budget). There was a project employee at Bære Sammen, Karine Hæggernæs, and
The Lion Mothers have received a generous gift of 500,000 kroner from the Grieg Foundation through the initiative Din Hjertesak. The support means a lot to our work with
On September 1, the Lion Mothers sent a letter to the Ministry of Labor and Social Inclusion after a number of conflicting messages from members regarding the relationship between care allowances and care benefits from the municipality,
The Lion Mothers have sent a request to the Norwegian Directorate of Education (Udir) with a stated concern about the interpretation of the Education Act regarding children with special needs at upper secondary school.
The lion mothers have sent a request to the Minister of Health Vestre and the Ministry of Health and Care Services on the grounds that lion families who have to travel for treatment and follow-up at
The Lion Mothers have been made aware of a disturbing "trend" where child welfare services require foster parents to apply for foster care benefits for the children they care for, when the children have diagnoses/challenges such as
What is the Norwegian Health Authority? The Norwegian Health Authority is responsible for ensuring that health and care services in Norway are safe, good and follow the rules. They do this by:
Some parents find that BUP does not always provide the help their children need. This may be due to long waiting times, lack of follow-up, refusal of referrals
Are you wondering how to proceed to appeal a decision you have received from NAV? Here you will find information about the
The Lion Mothers have submitted a consultation response to proposals for changes to the National Insurance Act, chapters 8 and 9 (sickness benefits, care benefits, nursing benefits and training benefits). You can read our consultation response below.
Here you can see how the parties respond to our questions. Socialist Left Party (SV), Centre Party (PS), Red (R), Industrial and Business Party (INP), Pensioner Parties (PP), Centre Party
When a child goes to school in Norway, they have the right to learn and develop based on their own abilities. The Education Act clearly states
The Lion Mothers of Midt have arranged an open day for our members at Rypetoppen Adventurepark in brilliant sunshine. This heat (over 30 degrees in Trøndelag at the moment) made
The time has come for the Lion Mothers' Aid Service pilot project to close its doors. Today, July 4th, was the last day of the project. We would like to clarify
July is Disability Pride Month – a month to celebrate the identity, strength and diversity of people with various illnesses and disabilities. It’s about
From 1 January 2023, a separate nationwide board was established to handle complaints about the State Administrator's decisions pursuant to Chapter 9 of the Health and Care Services Act, which
The Lion Mothers were invited to a feedback meeting organized by the Norwegian Directorate of Health regarding new professional national guidelines for people with autism spectrum conditions. Our representative was Connie Henriksen Grønvold, chairwoman
Deputy leader of Løvemammaene Midt, Tonje Avløs and central board member, Guri Wevelstad met with Conservative politicians Tage Pettersen and Turid Kristensen from the family and culture committee. The purpose of the meeting
This week, PALBU Kristiansand organized a professional day on pediatric palliative care for healthcare personnel. The lion mothers were invited to give a lecture on the relatives' perspective, and it was very well received.
The Lion Mothers were invited by the Swedish People's Party (SV) to a dialogue meeting at the Storting. The Swedish People's Party (SV) wanted input from the Lion Mothers regarding their health policy. They wanted to hear about
Lion Mothers' rights officer and board member, Gunn Helen Ege, and board member, Guri Wevelstad, were today in a dialogue meeting with State Secretary Ellen Rønning-Arnesen from the Ministry of Health and Care Services. They
Anne Kristine Risvand Myrseth from Løvemammaene's children's palliative care project Bære Sammen, is a user representative in the CHIP network. It is an interdisciplinary research network anchored at Oslo Met. The network has
In recent weeks, the Vestfold and Telemark cultural networks have arranged two conferences in Skien and Sandefjord on how we can create barrier-free leisure for children.
Over the course of three years, from 01.01.2022 to 31.12.2024, the project "Lion Mothers' Help Service" has made an absolutely formidable effort to help families with chronically ill and
Together with 30 interest groups, we have achieved a breakthrough in the demands behind the call for a complete revision of the Patient and User Rights Act. For the members of Løvemammaene, this means an opportunity
This week, lion mother Tonje, also deputy chairwoman of Løvemammaene Midt, and chairwoman Bettina Lindgren, met with SV's Kari Elisabeth Kaski and Cato Brunvand Ellingsen,
The case of the twin girls of Tonje Avløs, deputy leader of Løvemammaene Midt, has created great interest throughout the country. Stjørdal municipality has refused the family permission to continue
The Lionesses were invited to participate in the Nordic event for rare diseases, Nordic Health Talks. Central board member, Guri Wevelstad participated in the panel discussion and highlighted
The Lion Mothers Midt were at Lions Haram in Vatne and gave a short talk about the Lion Mothers. They talked about the important work the Lion Mothers do both centrally
The Lion Mothers have many members who have children with a parking permit (HC certificate for a car). We therefore invited the Frp, who are particularly concerned about transportation, to a dialogue meeting.
Unfortunately, we are in a very difficult situation when it comes to the Lion Mothers' Relief Service. When we started the project in January 2022, it was like a 3-year
Instead of a personal Christmas gift, employees at Sparebanken Vest, Eiendomsmegler Vest and Bulder can give a gift of 5,000 kroner to good causes.
The Lion Mothers have submitted the following consultation input to the representative proposal on free health care for children that was submitted to the Storting by the Red Party. Free pain relief for all children and
Pain relief and anesthesia for children should never be a cost issue. Now it is being legislated through a change in the regulations that have given hospitals since the 1980s
Based on the highly variable practices across the country, the Lion Mothers have sent letters to all municipalities in the country regarding transport to and from relief. We learn that
Last week, representatives from Løvemammaene, Eline Grelland Røkholt and Bettina Lindgren, went on an ever-so-small tour of Helgeland. Despite storms and really bad weather,
The lion mothers cheer for research and new knowledge. We cheer on projects that are aimed at making the lives of lion children and their families in
Are you wondering how to proceed to appeal a decision you have received from the municipality? Here you will find information about the
The Lion Mothers of Midt and the Bearded Santas create Christmas magic. This year, like last year, the Lion Mothers of Midt have shopped for and distributed gifts to children in hospitals in
The Lion Mothers of the North have written thank-you letters to everyone who contributed to the splicing to bring joy to children who have to spend part or all of Christmas in hospital.
On Monday, November 11, Tonje Merete Avløs (deputy chairwoman of LM Midt) together with Silje Louise Holum and Tuva Nordal Hegdal (board members of LM Midt) went shopping with Ove
In October and November, the neonatal intensive care unit at Drammen Hospital held professional days for its staff. Many lion cubs start their lives in just such a unit. The lion mothers
Today, the chairwoman of Løvemammaene, Bettina Lindgren, attended an oral hearing in the justice committee regarding the state budget 2025. There she spoke primarily about lion families'
Yesterday, central board member Hanne Svensrud attended an oral hearing at the transport and communications committee regarding the state budget 2025. In his oral presentation, Hanne focused on telling
Today, the deputy leader of Løvemammaene, Elin Gunnarsson, participated in an oral hearing in the municipal and administrative committee regarding the state budget 2025. Elin spoke about the consequences of poor municipal finances and
Today, board member of Løvemammaene, Guri Wevelstad participated in an oral hearing in the family and culture committee regarding the State Budget 2025. Guri spoke about the importance of ensuring
Today, the chairman of Løvemammaene, Bettina Lindgren, participated in an oral hearing in the work and social committee regarding the state budget 2025. There she spoke primarily
This week there was a seminar for the department of medical genetics at Haukeland University Hospital where around 100 employees participated. Here the Løvemammaene were invited to hold
The Løvemammaene discovered earlier in 2024 that changes had been made to the circular on basic and auxiliary benefits. Some changes have clearly been necessary and more
Today, central board member of Løvemammaene, Marlene Ramberg, participated in an oral hearing in the health and care committee regarding the state budget 2025. There she argued, among other things, for
Løvemammaene Midt have been lucky enough to be allowed to be the user organization of the month in September, and have been given a nice stand just within
Karoline S. Hansen, chairman of Løvemammaene Nord, has given a lecture at UNN Tromsø, at the neonatal intensive care unit in connection with their annual event "Tromsøkurset". During the Tromsø course was
Karoline, chairman of Løvemammaene Nord and resource person for the central board in universal design, has given a lecture on universal design. Earlier this year, she held the same
Løvemammaene has a good collaboration with NITO BFI (bioengineering institute) and has contributed with lectures at several of their professional days for bioengineers around
Løvemammaene has a good collaboration with NITO BFI (bioengineering institute) and has contributed with lectures at several of their professional days for bioengineers around
Tonje Merete Avløs, deputy chair and Silje Louise Holum, deputy member of Løvemammaene Midt showed up to be with our members at the open day in
The lion mothers were invited to give a lecture about what it's like to have a sick child and forced use of children in the health care system for bioengineering students at
The best interests of the child is a legal principle that must ensure that children's interests are highlighted and emphasized when decisions are made on matters of importance
Tonje Merete Avløs, deputy chairperson and Tuva Nordal Hegdal, board member of Løvemammaene Midt organized an open day in Rypetoppen Adventurepark for their members in Løvemammaene Midt in July.
Behind the podcast "Mann i krise" is a committed man named Kim André Sagen. He became a lion father himself a little over a year ago
One of the last trips for Bære Sammen before the summer went to Stange municipality in Innlandet and to Åkershagan training and activity centre. This was one
This week Løvemammaene Nord received an e-mail from Nordreisa municipality informing that they have removed the lower age limit on companion certificates, at our request - as well as
On Saturday 29 June, the Løvemammaene East organized Family Day in Foldvik Family Park in Larvik. The family day was originally supposed to take place the week before, but Foldvik recommended that we postpone it because of this
On Saturday 22 June, Løvemammaene East organized a family day at Tusenfryd in Ås Municipality. Thanks to funds from Bufdir, we were able to offer 100 tickets to our members,
On Saturday 22 June, Løvemammaene East organized Family Day at Barnas Gård at Hunderfossen. Thanks to funds from Bufdir, we were able to offer 50 tickets, including lunch, to
Researcher Ingrid Johnsen Hogstad (Molde University College) and Bære Sammen's project manager Eline Grelland Røkholt have written this scientific article about small children and grief.
Løvemammaene has sent written consultation input to the Ministry of Culture and Equality regarding the incorporation of the CRPD into Norwegian law. You can read the full consultation input below. The lion mothers are one
The Løvemammaen were invited to Sortland in Vesterålen to talk about the relatives' perspective, siblings and children's palliative care. It was our chairman Bettina who gave a lecture for social workers,
Bære Sammen was in a meeting with the research network CHIP to discuss research on child palliation. CHIP (Children In Palliative Care) is an interdisciplinary research network based at
Bære sammen has been in a dialogue meeting with nurses from the palliative care team for children and young people (PALBU) at Drammen hospital. From Bære brought together project manager Eline
Bringing together its project manager Eline Grelland Røkholt was invited to Karmøy municipality to talk about bereavement and bereavement support for kindergarten children and their families. On
This week, follow-up through Bære Sammen brought us to beautiful surroundings in Sandnessjøen. From the help service, Nina Bakkefjord and Eline Grelland Røkholt have had busy days
Løvemammaene Midt invited parents to a gathering in Ålesund and Molde, in collaboration with the central board of Løvemammaene. Helene Steigedal (chairman of LM Midt), Tonje Avløs (deputy chairperson of
In a series of very pleasant lectures and visits to various student campuses, it was the turn of the line association FRESK at NTNU Campus Gjøvik. The campus has several health professionals
Løvemammaene Nord, led by Karoline Storelv Hansen, has written consultation input for Tromsø municipality's consultation regarding the prevention of neglect and behavioral difficulties. The plan Tromsø municipality has
Bærum Hospital invited the Løvemammaen to give a lecture on coercive use against children at a professional evening for employees at the Department of Medical Biochemistry at Bærum Hospital. The
Today Løvemammaene Nord received a letter from Hadsel municipality thanking them for our regional team making them aware that they were still operating with
Over several years, Løvemammaene has had a good collaboration with the NITO Institute of Bioengineering, a collaboration we greatly appreciate. On the International Bioengineering Day 15.
Rania Al-Nahi from Løvemammaene's help service was at Nordlandssykehuset in Bodø and gave a presentation during the first day of the course "Quality of life in serious illness palliation". Her post acted
Through grant funding from both Helse Nord and the Norwegian Directorate of Health, Løvemammaene and Bære Sammen have had the opportunity to travel to Bodø to convey the relatives' perspective in
Løvemammaene has submitted consultation input to the Ministry of Health and Care for proposals for changes to the patient travel regulations. Read the input in its entirety below. The lion mothers are a diagnosis-independent organisation
Our regional team Løvemammaene Nord, which covers Finnmark, Troms and Nordland, has submitted a written consultation response to the health and care committee in the Storting regarding the proposal for the downsizing of
On Tuesday this week, project manager in Bære Sammen, Eline Grelland Røkholt, and board chairwoman Bettina Lindgren were on two different assignments in Bodø. Bettina held a 2
On 15 March 2024, the Løvemammaene sent a new letter to the Clinic for Addiction and Psychiatry at Sørlandet Hospital regarding a specialist certificate when applying for nursing allowance. Read the letter below.
Bære sammen, represented by Nina Bakkefjord, Anne Kristine Risvand Myrseth and Nina Herigstad, has met with Tonje Hov Grønli. She is the project manager for
Rania Al-Nahi from Løvemammaene's help service taught interdisciplinary further education in child palliation at OsloMet. The subject of the teaching was religious and cultural sensitivity in dealing with minority families. Rania
Bære sammen, represented by Nina Bakkefjord, Anne Kristine Risvand Myrseth and Nina Herigstad, has met with Tonje Hov Grønli. She is the project manager for
For the third year in a row, Løvemammaene was invited to give a lecture at Interdisciplinary further education in rehabilitation, interaction and management. Bente Berg started from
Today, the resource person for leisure and culture in Løvemammaene, Camilla Berg Rindahl, met with Polyfon. Kristianne Ervik (experienced consultant) and Brynjulf participated from Polyfon
Løvemammaene was again invited to give a lecture to students on the master's degree in children's nursing at OsloMet. This is an important contribution to education and
The lion mothers have sent letters to the Conservative Party, the Progressive Party, the Liberal Party, the Red Party, the Green Party, the Christian People's Party and Patient Focus to explain why the representative proposal from the Socialist Left Party
The lion mothers have submitted consultation input to Polyfon's strategy. Read the full consultation input below. INPUT TO POLYFONS STRATEGY 2024-2030 Who are we: Løvemammaene is a diagnosis-independent organization
The Løvemammaene have submitted input to the Ministry of Health and Care for a consultation on tenders for national insurance-funded pharmaceuticals. Read the full entry below. Consultation input - Tenders for national insurance-funded projects
This week the Løvemammaene were invited to give a lecture for students in social work associated with Nord University in Levanger and Bodø. First up was Levanger
Hurray!!! With jubilant joy, and again great awe, this Thursday we received the news from the Norwegian Directorate of Health that Bære Sammen, which is the children's palliation project for the Løvemammaene, is receiving a
Deputy member of the central board, Nina Herigstad, has given two lectures for students on behalf of the Løvemammaene. The first was a physical lecture for nursing students at UIS,
Through good cooperation and dialogue with educational institutions in the Oslo area, NSF Student and Løvemammaene have planned and developed a separate professional day about children for nursing students. This
When children's palliative care's goal of as good a life as possible is to be replaced by the goal of as good a death as possible. How do we set
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