Carry Together

The Lion Mothers' Children's Palliative Care Project. For families who have children with life-threatening and/or life-shortening illnesses, and the support system that meets these families.

You are not alone.

At Bære Sammen, we believe in the power of community and experience. When your child is living with a life-threatening or life-shortening diagnosis, we know that everyday life can be filled with both hope, uncertainty and challenges. That's why we offer support and guidance from peers, people who have experienced similar situations themselves, who can listen, share and help you find your way forward.

Through conversations, community and support, we want to give you and your family the space to feel seen, heard and understood. Together we can bear the burden a little easier.

What is pediatric palliation?

Many people associate the word palliative care with death. It is a concept that can seem scary and foreign, and is especially difficult to relate to when talking about children and young people. For the Lion Mothers, palliative care is primarily about living, and we distinguish between palliative and terminal phase (end of life). Both life-threatening and/or life-shortening illnesses are encompassed by the palliative care umbrella. Many children and young people therefore have conditions that fall under the concept of palliative care, and live with these for many years – many of them well into adulthood.

The World Health Organization (WHO) defines palliative care as follows:

Palliative care is an approach that aims to improve the quality of life of patients and their families facing life-threatening illness, through the prevention and relief of suffering, by early identification, thorough assessment, assessment and treatment of pain, and other problems of a physical, psychosocial and spiritual nature.

Pediatric palliative care is an active and comprehensive support for the physical, psychological, social and existential needs of the child and family, which begins at the time of diagnosis and lasts for life, with subsequent follow-up for the family. Pediatric palliative care includes all children from 0-18 years of age, but does not exclude those who are diagnosed in childhood and who survive beyond this age. (Towards)

Palliation actually means “cloak.” A cloak is an old outer garment that is placed over the shoulders to provide warmth. In a figurative sense, it can represent the placing of a soothing or protective cloak over the shoulders of a person.

"As good a life, and as good a death as possible"

For the Lion Mothers, pediatric palliative care is about carry together, about how hospitals, municipal agencies, assistants, schools, kindergartens, and everyone close to them can help make the situation a little easier to bear for the families concerned.

Our goal with Bære Sammen is to contribute to building on experiences and knowledge around each child, which allows us to bring the best with us and enable what everyone wants most: as good an everyday life in the family as possible, after all.

When a child dies, preparation is also needed, which can contribute to a death that the family can live with. That there has been space to think through what is important to just you. And that in the time after, arrangements are made to be able to live with the grief in the best possible way.

To get in touch with Bære Sammen, either as a private individual, specialist health service or other support organisation, send an email or contact us via our switchboard.

Carrying Together - project group

Carry Together - resource group

Community for those who have children with life-threatening and/or life-shortening illnesses

Children with life-threatening and life-shortening illnesses

For parents who have children with life-threatening and/or life-shortening illnesses, we have a separate closed Facebook group called «We who have children with life-threatening and life-shortening illnesses«". The group is only for paying members of the organization Løvemammaene who themselves have lion cubs that fall into these categories.

We also have a closed weekday chat in Signal called "Child Palliative Care Life" that members can join if they wish.

Community for those who have lost a child to illness

Lionheart

For parents who have lost their children due to illness and disability, we have a separate closed Facebook group called «Lionheart 🧡 Those of us who have lost children to illness«". The group is only for paying members of the organization Løvemammaene who have themselves lost one or more lion cubs to illness.