Carry Together

The lion mothers' child palliation project

What is pediatric palliation?

Many people associate the word palliative care with death. It is a concept that can seem scary and foreign, and is especially difficult to relate to when talking about children and young people. For the Lion Mothers, palliative care is primarily about living, and we distinguish between palliative and terminal phaseBoth life-threatening and/or life-limiting illnesses are encompassed by the palliative care umbrella. Many children and young people therefore have conditions that fall under the concept of palliative care, and live with these for many years – many of them even into adulthood.

The World Health Organization (WHO) defines palliative care as follows:

Palliative care is an approach that aims to improve the quality of life of patients and their families facing life-threatening illness, through the prevention and relief of suffering, by early identification, thorough assessment, assessment and treatment of pain, and other problems of a physical, psychosocial and spiritual nature.

Pediatric palliative care is an active and comprehensive support for the physical, psychological, social and existential needs of the child and family, which begins at the time of diagnosis and lasts for life, with subsequent follow-up for the family. Pediatric palliative care includes all children from 0-18 years of age, but does not exclude those who are diagnosed in childhood and who survive beyond this age. (Towards)

Palliation actually means “cloak.” A cloak is an old outer garment that is placed over the shoulders to provide warmth. In a figurative sense, it can represent the placing of a soothing or protective cloak over the shoulders of a person.

"As good a life, and as good a death as possible"

For Løvemammaene, child palliation and carrying it together is about how the hospitals, municipal agencies, assistants, school, nursery school and everyone close to them can contribute to making the situation a little easier to bear for the families concerned.

It is about being able to get direct guidance and assistance as parents
It is about contributing to good support around siblings
It is about those who are to be helpers around the child and the family having as good an insight as possible
It's about not being alone when it really matters

Our goal with Bære Sammen is to contribute to the building around each child of experiences and knowledge that enable us to take the best with us, and learn from what saps our strength, and makes impossible what everyone wants most of all: a as good everyday life in the family as possible after all.

In the event of the child's death, preparation is also needed, which can contribute to a death that the family can bear to live with. That space has been given to think through what is important to you. And that, in the time after, arrangements are made to be able to live on with the grief in the best way possible.

To get in touch with Bære Sammen, either as a private individual, specialist health service or other support organisation, send an email or contact the project manager.

Carrying Together - project group

Community for those who have lost a child to illness

Lionheart

For parents who have lost their children to illness, we have a separate closed Facebook group called "Løvehjerte". The group is only for paying members of the Løvemammaene organization who have themselves lost one or more lion cubs. Send an email to Bære Sammen to stay in the group, as it is not possible to look up or access on your own.