«Å ansvarliggjøre sin neste» er overskriften på kronikken om barnepalliasjon ført i pennen av generalsekretæren i Foreningen for barnepalliasjon. Løvemammaene anerkjenner at FFB gjennom mange år har satt barnepalliasjon på dagsorden, men vi er uenig i mange av påstandene i kronikken. Løvemammaene er enig i at faglige diskusjoner er nødvendig for å styrke området, bedre […]
I dag sikret FrP flertall i Stortinget for at ingen kommuner lenger skal plassere mennesker mellom null og femti år på sykehjem mot deres egen vilje. Dette gjelder selvfølgelig også barn, der foreldrene ikke ønsker en slik løsning. Allerede i 2018 fremmet Olaug V. Bollestad (Krf) og Nicholas Wilkinson (SV) forslag om å ta nye
AMENDMENT IN THE LAW REGARDING CHILDREN IN NURSING HOMES Read More »
Løvemammaenes Barnepalliasjonskomité har sendt inn følgende skriftlige høringssvar til Stortingsmelding nr. 24 2020: «Lindrende behandling og omsorg — Vi skal alle dø en dag. Men alle andre dager skal vi leve.» Løvemammaene er en organisasjon som jobber for å opplyse om, forbedre og sikre syke og funksjonshemmede barns rettigheter i Norge. Organisasjonen er politisk uavhengig,
HEARING RESPONSE ON CHILD PALLIATION Read More »
Don't leave parents with dying children alone, without someone there to answer the phone. This is what member of the Løvemammaenes Child Palliative Committee, Eline Grelland Røkholt, writes in a strong and important chronicle in Dagsavisen. So the warmest thanks to all of you who helped us with our dying child, until the day he died suddenly, but
WE NEED SOMEONE TO CALL Read More »
A brutal question. A question that few of us have to ask. A question that really shouldn't exist anywhere else but in a movie, a movie like that where you sit on the edge of the sofa, clasp your hands together, hope and cheer that something happens, which means that the question doesn't need to be answered anyway and everyone lives
HOW DO I WANT MY CHILD TO DIE? Read More »
Who would you put your child's life in the hands of, if you had to? Feel free to take a short reflection break before answering. Feel the weight of a child who needs you. Who will die, sooner or later. You have everything to lose, and every thing you do can be decisive. Did you get upset? It may
WHO WILL HELP THE HELPERS IN NORWEGIAN CHILD PALLIATION? Read More »
The Løvemammaene's child palliation committee was at an important meeting with the Norwegian Directorate of Health today. It was a good meeting where we got to say something about what we believe is the need within the difficult field of child palliation. Catharina Dørumsgard, Anne Kristine Risvand Myrseth, Marlene Ramberg, Eline Grelland Røkholt and Nina Bakkefjord participated from our committee. Løvemammaene's Children's Palliative Care Committee is very involved
THE LION MOTHERS, THE DIRECTORATE OF HEALTH AND CHILD CARE Read More »
"On the same day that Even received the diagnosis, the family made a phone call. The answer calmed Beate. She learned that sometime in the future they might be able to carry a small coffin on a narrow dirt road, past a white chapel and lay it down on a windswept meadow close to the sea on Valøya. In today's A magazine (Aftenposten), led
EVEN HAVE ONLY A FEW YEARS TO LIVE Read More »
About the process around children's hospice. Several have reacted to the government's allocation of annual funds to a children's hospice in Kristiansand. The lion mothers have been clear that what funds should be allocated for are child palliation teams in all the country's children's wards. Most people reading this may not have very seriously ill children, and it may be difficult to understand
THE SCHOOL OF OTHER LEADERS Read More »
This Friday, the Løvemammaene were invited to meet the Minister of Local Government and Modernization, Nikolai Astrup, and director of the department for child and youth health in the Directorate of Health, Ellen Margrethe Carlsen. Dagsavisen was also present. The background for the meeting is that the Norwegian Directorate of Health will receive NOK 4.5 million to start an innovation project to create coherent digital services for our "user group". The
COORDINATION AND DIGITALIZATION Read More »
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