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ORAL HEARING AT THE STORTING REGARDING CHILD PALLIATION

Leave a Comment / Child palliation, Current affairs, Interest political work, Committees / The lion mothers

Løvemammaenes barnepalliasjonskomité deltok på muntlig høring vedrørende stortingsmelding 24 om barnepalliasjon, den 30.09.20 kl 09.37-09.40. Her er innspillet: «EGR: Takk for at vi fikk komme, Vi er fra Løvemammaenes Barnepalliasjonskomite.Jeg heter Eline Grelland Røkholt.AK: Jeg heter Anne Kristine Risvand Myrseth Både Eline og jeg har mistet våre barnsom begge var alvorlig syke. Løvemammaenes Barnepalliasjonskomité arbeider […]

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MEETINGS BEFORE HEARING ON CHILD PALLIATION

Leave a Comment / Child palliation, Current affairs, Interest political work, Committees, Our work / The lion mothers

Nå er det travle dager før onsdagens Stortingshøring om Lindrende behandling og omsorg, herunder barnepalliasjon. Løvemammaenes Barnepalliasjonskomite har i dag deltatt på to møter med representanter fra Høyre i Helse- og omsorgskomiteen på Stortinget. Første møte ble ledet av barnelege Einar Bryne hvor en rekke sentrale organisasjoner og foreninger var representert. Etterpå hadde medlemmer i

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barnepalliasjon, høringssvar, løvemammaene

HEARING RESPONSE ON CHILD PALLIATION

Leave a Comment / Child palliation, Current affairs, Interest political work, Committees, Our work / The lion mothers

Løvemammaenes Barnepalliasjonskomité har sendt inn følgende skriftlige høringssvar til Stortingsmelding nr. 24 2020: «Lindrende behandling og omsorg — Vi skal alle dø en dag. Men alle andre dager skal vi leve.» Løvemammaene er en organisasjon som jobber for å opplyse om, forbedre og sikre syke og funksjonshemmede barns rettigheter i Norge. Organisasjonen er politisk uavhengig,

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WE NEED SOMEONE TO CALL

Leave a Comment / Child palliation, Current affairs, Interest political work, Media / The lion mothers

Don't leave parents with dying children alone, without someone there to answer the phone. This is what member of the Løvemammaenes Child Palliative Committee, Eline Grelland Røkholt, writes in a strong and important chronicle in Dagsavisen. So the warmest thanks to all of you who helped us with our dying child, until the day he died suddenly, but

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barnepalliasjon, barn som dør, sorg, kjærlighet, barnepalliasjonsteam

HOW DO I WANT MY CHILD TO DIE?

Leave a Comment / Child palliation, Current affairs, Stories from members, Committees, Our work / The lion mothers

A brutal question. A question that few of us have to ask. A question that really shouldn't exist anywhere else but in a movie, a movie like that where you sit on the edge of the sofa, clasp your hands together, hope and cheer that something happens, which means that the question doesn't need to be answered anyway and everyone lives

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WHO WILL HELP THE HELPERS IN NORWEGIAN CHILD PALLIATION?

Leave a Comment / Child palliation, Current affairs, Interest political work, Committees, Media / The lion mothers

Who would you put your child's life in the hands of, if you had to? Feel free to take a short reflection break before answering. Feel the weight of a child who needs you. Who will die, sooner or later. You have everything to lose, and every thing you do can be decisive. Did you get upset? It may

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MEETING WITH KRF

Leave a Comment / Child palliation, Current affairs, Interest political work, Committees, Our work / The lion mothers

Løvemammaenes barnepalliasjonskomité hadde møte med Geir Jørgen Bekkevold (fra KrF) og politisk rådgiver Mathea Fjukstad Hansen om barnepalliasjon i dag. Fra Løvemammaenes Barnepalliasjonskomité stilte Anne Kristine Risvand Myrseth og Catharina Dørumsgard. Vi innledet møtet med å presentere Løvemammaene. Vi fortalte også litt om de ulike komiteene som har blitt opprettet det siste året. Deretter presenterte

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EVEN HAVE ONLY A FEW YEARS TO LIVE

Leave a Comment / Child palliation, Current affairs, Stories from members, Committees, Media / The lion mothers

"On the same day that Even received the diagnosis, the family made a phone call. The answer calmed Beate. She learned that sometime in the future they might be able to carry a small coffin on a narrow dirt road, past a white chapel and lay it down on a windswept meadow close to the sea on Valøya. In today's A magazine (Aftenposten), led

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THE SCHOOL OF OTHER LEADERS

Leave a Comment / Child palliation, Current affairs, Committees / The lion mothers

About the process around children's hospice. Several have reacted to the government's allocation of annual funds to a children's hospice in Kristiansand. The lion mothers have been clear that what funds should be allocated for are child palliation teams in all the country's children's wards. Most people reading this may not have very seriously ill children, and it may be difficult to understand

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OM Å BÆRE ET DØENDE BARN

Leave a Comment / Child palliation, Current affairs, Committees, Media, Our work / The lion mothers

– I dag skriver jeg i VG om noe jeg ikke har orket å dele før. Og jeg får også lov til å fortelle historiene til to av mine fantastiske kollegaer i Løvemammaenes Barnepalliasjonskomité. Jeg håper at de som har makt til å bestemme orker å lese så ikke enda flere må oppleve det samme som

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