barnepalliasjonskomiteen Arkiver - Page 5 of 6

ORAL HEARING AT THE STORTING REGARDING CHILD PALLIATION

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Løvemammaenes barnepalliasjonskomité deltok på muntlig høring vedrørende stortingsmelding 24 om barnepalliasjon, den 30.09.20 kl 09.37-09.40. Her er innspillet: «EGR: Takk for at vi fikk komme, Vi er fra Løvemammaenes Barnepalliasjonskomite.Jeg heter Eline Grelland Røkholt.AK: Jeg heter Anne Kristine Risvand Myrseth Både Eline og jeg har mistet våre barnsom begge var alvorlig syke. Løvemammaenes Barnepalliasjonskomité arbeider […]

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MEETINGS BEFORE HEARING ON CHILD PALLIATION

Leave a Comment / Child palliation, Current affairs, Interest political work, Committees, Our work / The lion mothers

Nå er det travle dager før onsdagens Stortingshøring om Lindrende behandling og omsorg, herunder barnepalliasjon. Løvemammaenes Barnepalliasjonskomite har i dag deltatt på to møter med representanter fra Høyre i Helse- og omsorgskomiteen på Stortinget. Første møte ble ledet av barnelege Einar Bryne hvor en rekke sentrale organisasjoner og foreninger var representert. Etterpå hadde medlemmer i

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barnepalliasjon, høringssvar, løvemammaene

HEARING RESPONSE ON CHILD PALLIATION

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Løvemammaenes Barnepalliasjonskomité har sendt inn følgende skriftlige høringssvar til Stortingsmelding nr. 24 2020: «Lindrende behandling og omsorg — Vi skal alle dø en dag. Men alle andre dager skal vi leve.» Løvemammaene er en organisasjon som jobber for å opplyse om, forbedre og sikre syke og funksjonshemmede barns rettigheter i Norge. Organisasjonen er politisk uavhengig,

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WE NEED SOMEONE TO CALL

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Don't leave parents with dying children alone, without someone there to answer the phone. This is what member of the Løvemammaenes Child Palliative Committee, Eline Grelland Røkholt, writes in a strong and important chronicle in Dagsavisen. So the warmest thanks to all of you who helped us with our dying child, until the day he died suddenly, but

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barnepalliasjon, barn som dør, sorg, kjærlighet, barnepalliasjonsteam

HOW DO I WANT MY CHILD TO DIE?

Leave a Comment / Child palliation, Current affairs, Stories from members, Committees, Our work / The lion mothers

A brutal question. A question that few of us have to ask. A question that really shouldn't exist anywhere else but in a movie, a movie like that where you sit on the edge of the sofa, clasp your hands together, hope and cheer that something happens, which means that the question doesn't need to be answered anyway and everyone lives

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VISIT BY AP AND DIGITAL MEETING WITH SV

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Løvemamma Nina har i dag åpnet hjemmet sitt for besøk av Arbeiderpartiet ved Hege Haukeland Liadal og Tuva Moflag. Eline Grelland Røkholt fra Løvemammaenes barnepalliasjonskomité deltok også. Vi hadde en lang prat om mange sentrale temaer innen barnepalliasjon og stortingsmeldingen som nå skal behandles. Særlig snakket vi om hvordan arbeidet i fagfeltet bør utvikles videre

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WHO WILL HELP THE HELPERS IN NORWEGIAN CHILD PALLIATION?

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Who would you put your child's life in the hands of, if you had to? Feel free to take a short reflection break before answering. Feel the weight of a child who needs you. Who will die, sooner or later. You have everything to lose, and every thing you do can be decisive. Did you get upset? It may

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THE LION MOTHERS, THE DIRECTORATE OF HEALTH AND CHILD CARE

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The Løvemammaene's child palliation committee was at an important meeting with the Norwegian Directorate of Health today. It was a good meeting where we got to say something about what we believe is the need within the difficult field of child palliation. Catharina Dørumsgard, Anne Kristine Risvand Myrseth, Marlene Ramberg, Eline Grelland Røkholt and Nina Bakkefjord participated from our committee. Løvemammaene's Children's Palliative Care Committee is very involved

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EVEN HAVE ONLY A FEW YEARS TO LIVE

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"On the same day that Even received the diagnosis, the family made a phone call. The answer calmed Beate. She learned that sometime in the future they might be able to carry a small coffin on a narrow dirt road, past a white chapel and lay it down on a windswept meadow close to the sea on Valøya. In today's A magazine (Aftenposten), led

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WHO SHOULD WE CALL WHEN OUR CHILDREN DIE?

Leave a Comment / Child palliation, Current affairs, Stories from members, Interest political work, Committees, Media / The lion mothers

Even is four years old and lives in the north of Trøndelag. He was perfectly healthy until he was two. Now he is paralyzed, blind and has lost his language. Even will die while he is still small. He is in a lot of pain because his body is full of spasms. Therefore he does not like to travel; it does

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