Consultation input - Tenders for national insurance-funded pharmaceuticals

The Løvemammaene have submitted input to the Ministry of Health and Care for a consultation on tenders for national insurance-funded pharmaceuticals. Read the full entry below.

Consultation input - Tenders for national insurance-funded pharmaceuticals

Løvemammaene is a diagnosis-independent organization that works to inform about and improve the rights of children and young people with illness and functional variation. We are passionate about support, freedom and equality for the whole family. The organization is growing and now has over 7,900 members. 

Løvemammaene experience that many medicines for children have to be applied for in Section 3 of the Blue Prescription Regulations. The reason for this may be that the child must have the medicine in the form of a liquid in a gastrostomy, as some tablets cannot be dissolved in water, or that adapted strength does not fall under Section of the Blue Prescription Regulations 2. This is a cumbersome system for many of our members who have children with complicated illnesses, where a child can have as many as 10 different medicines during a day, divided into even more doses. Some medicines are also so vital that a decision cannot be waited for and relatives must then pay for medicines themselves, and send reimbursement to HELFO. Far from all relatives have such finances that they can put large sums until the money is refunded. However, we find that the hospital pharmacies can in some cases make exceptions to deliver the medication until HELFO has made a decision. On the other hand, one experiences major challenges with the private pharmacy chains that do not dare to take that type of risk. You cannot be at the mercy of which pharmacy you are associated with or pick up your medication from.  

The Løvemammaen recommend that, in the further work with medicines for children, to a far greater extent work on getting medicines that this patient group uses over to section 2 of the Blue Prescription Regulations. This will ease the work process of doctors in the specialist health service, as well as the burden that relatives have to bear in anticipation of decision. Such a change will therefore also save resources.  

With best regards 

Løvemammaene