Løvemammaene, forfatter på Løvemammaene

Network meeting with the research network CHIP (Children In Palliative Care)

Current affairs, Carry Together, Child palliation, Research and studies, Interest political work, Municipal services, Life with a sick child, The work of the mother lions / Løvemammaene

Anne Kristine Risvand Myrseth from Løvemammaene's children's palliative care project Bære Sammen, is a user representative in the CHIP network. It is an interdisciplinary research network anchored at Oslo Met. The network has members from clinical practice, higher education, research and user representatives. In addition, national and international partners are associated with CHIP and in the various projects. This full-day meeting provided a thorough review of

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"Culture without barriers"

Current affairs, Leisure and culture, Equality, The work of the mother lions / Løvemammaene

In recent weeks, the Vestfold and Telemark cultural network has arranged two conferences in Skien and Sandefjord on how we can create barrier-free leisure for children and young people with chronic illnesses and disabilities. These conferences are part of the project "Culture without barriers" that the cultural network has in collaboration with the Løvemammaene. It is thanks to the resource person for

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3 years of Løvemammaene' Aid Service – a successful project!

Current affairs, Stories from members, The help service, The work of the mother lions / Løvemammaene

Over the course of three years, from 01.01.2022 to 31.12.2024, the project "Løvemammaenes hjelpetjeneste" has made an absolutely formidable effort to help families with chronically ill and disabled children. Now the project with its accompanying approved project report is complete, and we would like to share the results with our followers and supporters! The Løvemammaenes hjelpetjeneste has been possible with support

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Impact of a complete revision of the Patient and User Rights Act

Current affairs, Interest political work, Municipal services, The work of the mother lions, The specialist health service / Løvemammaene

Together with 30 interest organizations, we have achieved success in the demands behind the petition for a complete revision of the Patient and User Rights Act. For the members of Løvemammaene, this means an opportunity to secure better rights for our children and young people in the future. On April 1st, there was a committee meeting in the Health and Care Committee, where they, among other things, discussed a representative proposal for an assessment and treatment guarantee

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Meeting with SV at the Storting

Current affairs, Relief, BPA, CRPD, Interest political work, Municipal services, Life with a sick child, The work of the mother lions, Regional teams / Løvemammaene

This week, lion mother Tonje, also deputy leader of Løvemammaene Midt, and chairwoman Bettina Lindgren, met with SV's Kari Elisabeth Kaski and Cato Brunvand Ellingsen, as well as two political advisors, at the Storting. The meeting was about Stjørdal Municipality's planned forced relocation of Tonje's twin girls and how we can prevent this from happening in the future. In the meeting, she told

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Lioness Tonje fights for her daughters to be allowed to live at home

Current affairs, Relief, BPA, CRPD, Stories from members, Interest political work, Municipal services, Life with a sick child, Regional teams / Løvemammaene

The case of the twin girls of Tonje Avløs, deputy leader of Løvemammaene Midt, has created great interest throughout the country. Stjørdal municipality has refused the family the continuation of the BPA scheme they have and will move her two daughters to an institution (children's home) due to their complex medical condition. The daughters are no more than 8 years old, and cognitively only 1-2 years old.

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Løvemammaene in panel discussion at Nordic Health Talks

Current affairs, Interest political work, Life with a sick child, The work of the mother lions, The specialist health service / Løvemammaene

Løvemammaene were invited to participate in the Nordic event for rare diseases, Nordic Health Talks. Central board member, Guri Wevelstad participated in the panel discussion and highlighted some of the challenges we see today in the follow-up of children with rare diagnoses. The other panelists consisted of Olve Moldestad, head of newborn screening at OUS, Nard Schreurs, head of

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Løvemammaene In the Middle of Meeting with Lions Haram

Current affairs, Lecture, Regional teams / Løvemammaene

Løvemammaene of Midt were at Lions Haram in Vatne and gave a short talk about Løvemammaene. They talked about the important work Løvemammaene do both centrally and regionally. Lions Haram invited Løvemammaene of Midt to an open meeting to raise money for the important work that is carried out in Løvemammaene of Midt. From Løvemammaene of Midt participated: Helene

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Meeting with Frp at the Storting

Current affairs, Interest political work, The work of the mother lions, Transportation / Løvemammaene

Løvemammaene have many members who have children with a parking permit (HC certificate for a car). We therefore invited Frp, who are particularly concerned about transport, to a dialogue meeting about the fee for HC parking for people with disabilities. The background to the meeting was that many of our members have children and young people with medical conditions that require HC cars and/or who have

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Acute risk of closure of the emergency service!

Current affairs, The help service, The work of the mother lions / Løvemammaene

Unfortunately, we are in a very difficult situation when it comes to Løvemammaene' Aid Service. When we started the project in January 2022, it was as a 3-year project with grant funds from the DAM Foundation, and various other support, including a large donation from Kavli. We started small, but the aid service quickly gained a good reputation and is constantly growing.

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